United Ostomy Associations of America
  • HOME
  • OSTOMY INFORMATION
    • Ostomy Information
      • What Is An Ostomy?
      • Living with an Ostomy: FAQs
      • Diet + Nutrition
      • Ostomy Skin Care
      • Sexuality
      • Bill Of Rights
      • New Ostomy Patient Guide
    • My Ostomy
      • Ileostomy
      • Colostomy
      • Urostomy
      • J-Pouch
      • Continent Diversions + Other Ostomy Types
      • Temporary Ostomy
      • Short Bowel Syndrome
      • Español
    • Children to Young Adults with Ostomies
      • Infant/Toddler (0-3 Years)
      • Preschool (3-5 Years)
      • Elementary School (6-9 Years)
      • Pre-Adolescent (10-13 Years)
      • Adolescent (14-18 Years)
      • Young Adult (18-25 Years)
      • Parents & Clinicians Resources
      • Know Your Rights
      • What To Expect After Surgery
      • Odor Control
      • Fast Facts
      • Ostomy Game
    • Crohn’s Disease & Ulcerative Colitis Information
      • Defining, Caring and Treating
      • Preparing for Ostomy Surgery
      • Common Issues, Managing Diet, Mental Health
      • Intimacy, Fertility and Pregnancy
      • Resources
    • General Information
      • UOAA Ostomy Marketplace
      • Product + Supply Information
      • UOAA Resources Library
      • Resources for Nurses/Home Health
      • Travel Tips + TSA
      • Donate Your Ostomy Supplies
      • Emergency Supplies
      • Related Links
      • UOAA Virtual Ostomy Clinic
      • Outpatient Ostomy Services Locator
  • SUPPORT
      • discussion
        Ostomy 101:
        Easily communicate “What is an ostomy?" with our infographic.

        Read More

    • Find Support
      • Support Group Finder
      • Support Group Websites
      • UOAA Virtual Ostomy Clinic
      • Online Peer and Ostomy Support Programs
      • Outpatient Ostomy Services Locator
      • Find a Mental Health Provider
      • Find an Ostomy Nurse
      • Online Discussion Board
      • Apps for Ostomates
      • Emotional Concerns
    • Connect With Us
      • Start/Affiliate Your Group With UOAA
      • Resources For ASGs
      • National Membership
      • Sign Up for Our E-Newsletter
    • Participate
      • Attend An Event
      • Become An Advocate
      • Join Us for a Conference
      • Make A Donation
      • Become a Member of The Phoenix Society
      • Donate Your Ostomy Supplies
      • Take A Survey
  • ADVOCACY
      • portal
        Roadmap to Establishing Outpatient Ostomy Services
        Documents that are available as PDFs to download and print.

        Read More

    • About
      • Advocacy Program
      • Advocacy Priorities
      • 10 Questions to Help You Speak Up and Self-Advocate
    • Get Involved
      • Understanding the Medicare Competitive Bidding Program 2025 Ruling
      • Take Action
      • Join Advocacy Network
      • How to Be An Ostomy Champion
      • Ostomy Awareness Day
      • Roadmap to Establishing Outpatient Ostomy Services
    • Tools and Resources Library
      • Non-Medical Switching Resources
      • Ostomy and Continent Diversion Patient Bill of Rights
      • Restroom Access Self-Advocacy Tools
      • Travel Tips + TSA Communication Card
      • Swimming with an Ostomy
      • Mythbusters Infographic
      • Workplace Resources
      • Aging with an Ostomy or CD
    • Take Control of your Healthcare
      • UOAA Virtual Ostomy Clinic
      • Know Your Ostomy Checklist
      • Know Your Ostomy Supplies Checklist
      • Physician Visit Checklist
      • Know Your Health Care Insurance
      • Know Your Pouching System
      • Know What’s in Your Medical Record
  • WHO WE ARE
      • Have a Question for Us?
        UOAA is a 501(c)(3) nonprofit organization that supports, empowers, and advocates for people who have had or who will have ostomy or continent diversion surgery.

        Contact Us

    • About Us
      • Our Mission + History
      • Our Leaders
      • National Sponsors + Partners
      • National Membership
      • Contact Us
    • How We Help
      • Advocacy
      • Awareness
      • Support
      • National Conference
      • Ostomy Nurse Scholarship
    • Get Involved
      • Volunteer
      • Become A Leader
      • Join A Committee
      • Career Opportunities
      • Sign Up for Our E-Newsletter
  • LATEST
  • EVENTS
    • Ostomy Awareness Day
    • Run For Resilience 5K
    • Ostomy Academy
    • Educational Webinars
    • 2025 National Conference
    • Calendar
  • GIVE NOW
  • SEARCH
  • Menu Menu

By Elaine O’Rourke, Ostomy/IBD Health Mentor

You’re Not Alone if You’re Having Sexual Issues

Sexual Issues with an ostomy or IBD are commonplace. People can experience sex problems pre or post-ostomy surgery. With IBD or bladder issues the constant bathroom habits can lead to sexual dysfunction. Cancer treatments can also affect function.

Unfortunately, many people are embarrassed to talk about sexual issues and think that nothing can be done.

You may feel so alone, wondering why it hurts so much, why you can’t enjoy it, or why you can’t get an erection, ejaculate or orgasm.

The good news is, you are not alone and you can seek help.

I talked with Meghan Markowski, Expert Pelvic Floor Physical Therapist, from the Brigham and Women’s Hospital in Boston, MA. We discussed “Pelvic Floor Issues for All Genders: Sexual Concerns, Bladder and Bowel” and as they relate to having IBD or Ostomy

This short video clip details more about sexual issues.

To watch the Full Episode see the link at end.

Types of Sexual Issues

Sexual issues happen in all genders. Problems that people experience include painful intercourse either vaginal or anal, abdominal or pelvic pain, low libido, incontinence during sex, muscle tension, issues with erection, ejaculation and orgasm.

Reasons for Sexual Issues

The pelvic floor muscles are involved during sex, urination and defecation. Therefore Pelvic Floor problems can involve sex, bladder and bowel issues and they can be interrelated.

The muscles may need to be retrained from years of over or underuse.

People with bladder or bowel issues may have increased problems. This can be from years of clenching while trying to make it to the bathroom, having incontinence, perianal disease, fissures, fistulas, rectal prolapse. The muscles are most likely overused and are in a state of contraction.  

Cancer treatments can cause a host of problems as can giving birth.

Physical Therapy for the Pelvic Floor

There is a specialized field of Physical Therapy (PT) for the Pelvic Floor. These PT’s are especially trained to evaluate and examine the function and dysfunction of the muscles of the pelvic floor. This is not something that a regular PT can do.

Many people, even medical professionals are not aware of this type of PT and how it can help, even though it has been around for quite sometime. It can greatly benefit you. If you are experiencing any issues, try to get a referral.

Role of the Pelvic Floor

As mentioned the pelvic floor muscles are involved during sex, urination and defecation. It is the base for the organs to sit upon and reflects on our posture and even breathing.

Just like with anywhere else in the body, structural and muscular imbalances happen. Therefore it happens in the pelvic floor but you can’t see these muscles.

Pelvic Floor Physical Therapy with an Ostomy

If you have an ostomy you can still benefit from pelvic floor physical therapy.

A qualified pelvic floor PT will take your history, evaluate and examine internally and externally. If you’ve had organs or rectum and anus removed you can still have this type of PT.

Exercises and an appropriate game plan will be prescribed.

The length of treatment will vary depending on the patient.

Other Approaches

Issues such as depression, low self-esteem, poor body image and fear around your ostomy are all things I address in my “Surviving to Thriving” program. There is a full section about Intimacy and Relationships. Or you may wish to consult a sex therapist or reach out for some other type of support.

Other Resources

Elaine’s other relevant blogs: https://elaineorourke.com/blog/

Full Episode: “Pelvic Floor Issues for all genders: Sexual Concerns, Bladder and Bowel”

Make sure to grab your FREE GUIDE: ‘3 simple ways to eliminate fears about your ostomy” by visiting Elaine’s website www.ElaineOrourke.com

About Elaine

Elaine O’Rourke is an Ostomy/IBD Health Mentor and the creator of the program “Surviving To Thriving: Overcoming Ostomy Challenges So You Can Live a FulFilling Life”.  She is a certified Yoga Therapist & Teacher since 2003, Sound Healer, EFT & Reiki Practitioner, Recording Artist and International Retreat Leader. Her lighthearted and fun personality shines through her teachings/programs as she loves to inspire others.  She is a contributing writer to the national Phoenix Magazine and UOAA, presenter at the UOAA National Conference and speaker at Girls with Guts retreat. 

YouTube: Elaine O’Rourke Yoga, Ostomy, IBD

Facebook: https://www.facebook.com/ostomyibdlife/

Instagram: https://www.instagram.com/ostomyibdlife/

Web: ElaineOrourke.com

Related

Our Categories

Advocacy (78) Caregivers (20) Colorectal Cancer (19) Colostomy (139) Continent Diversions (8) Digital Sponsor (77) Disaster Preparation (4) Emotional Health (63) Events (32) Exercise/Sports (48) Fashion/Clothing (11) Healthcare (22) IBD (55) Ileostomy (184) J-Pouch (7) jejunostomy (7) Membership (3) Nutrition (19) Ostomy 5k (20) Ostomy 5k (16) Ostomy Awareness (55) Ostomy Basics (55) Ostomy News (94) Ostomy Nurse (13) ostomy reversals (12) Ostomy Supplies (2) Ostomy Tips (93) Ostomy Videos (4) Patient Stories (98) Pediatric Ostomy (5) Personal (66) Research (3) Sexuality (12) Short Bowel Syndrome (17) Skin Care (9) Social Life (5) Support Group News (12) Support Resources (15) Teens (3) Travel (11) UOAA Conference (17) UOAA History (3) UOAA Volunteers (4) Urostomy (112) Young Adult (7)

Support Us:

Your Donation Funds UOAA Educational Programs:

DONATE TODAY
SUSTAINING GIFT
BECOME A MEMBER
UOAA E-NEWS SIGN UP
Get updates on events, national advocacy and important topics in the ostomy and continent diversion community.

Contact Us


United Ostomy Associations of America
P.O. Box 2293
Biddeford, ME 04005-2293

Virtual Ostomy Clinic

Contact UOAA

Donate Your Supplies

Call us toll-free at: 1-800-826-0826.
Our Information Line hours are Monday-Friday, 9am to 3pm EST. If you have an emergency, please dial 911 or contact your local medical professional.

Please understand that UOAA is a private, nonprofit, advocacy and informational organization. We are not a medical facility and we do not have medical or legal professionals on staff. Therefore, UOAA does not provide Medical, Mental Health, Insurance or Legal Advice. Visit UOAA Virtual Ostomy Clinic provided by The Wound Company for non-emergency, virtual ostomy support.

Privacy Policy

Get Involved

UOAA is the leading organization proactively advocating on behalf of the ostomy community. Recognizing that we are always stronger together, we encourage everyone to get involved by joining our Advocacy Network. We’ve also created several Advocacy Tools and Resources to help you successfully advocate on behalf of the ostomy community to ensure every ostomate receives quality care.

UOAA Run for Resilience Logo

UOAA does not and shall not discriminate on the basis of race, color, religion (creed), gender, gender expression, age, national origin (ancestry), disability, marital status, sexual orientation, or military status, in any of its activities or operations.

Digital Health Award
© 2005-2026, UOAA. All Rights Reserved l Design by Tap House Media
  • Link to Facebook
  • Link to X
  • Link to Pinterest
  • Link to LinkedIn
  • Link to Youtube
  • Link to Mail
  • Link to Instagram
Link to: Fertility, Pregnancy, IVF for Women with an Ostomy Link to: Fertility, Pregnancy, IVF for Women with an Ostomy Fertility, Pregnancy, IVF for Women with an Ostomy Link to: Angie’s Story: Going Public about Her Ostomy After 38 Years Link to: Angie’s Story: Going Public about Her Ostomy After 38 Years Angie’s Story: Going Public about Her Ostomy After 38 Years
Scroll to top Scroll to top Scroll to top