Self-Advocacy Tools/ Resources
UOAA Action Center
Every Voice Counts. And Every Person Living With An Ostomy Should Be Heard.
Advocacy is promoting what is important to you and persuading others to support your cause. The most convincing advocate for UOAA is the individual who can talk about a personal experience with their ostomy surgery. No one knows better than you what living with an ostomy is like. You can make a real impact on decision-makers and together we can drive change. Go to our Action Center for ways that you can get involved at the grassroots level.
Because None Of Us Is As Loud As All Of Us!
Our Advocacy Program
United Ostomy Associations of America, Inc. (UOAA) is the leading organization proactively advocating on behalf of all people living with an ostomy or continent diversion in the United States.
One form of advocacy that people may be familiar with is that of professional “patient advocates”. These advocates provide individualized services such as navigating the complex healthcare system including quality of care complaints, assisting patients with making difficult medical decisions, and helping with medical bills and insurance denials/appeals. UOAA is unable to be a personal “patient advocate” for each person with an issue.
However, when we say we “advocate for people who have had ostomy surgery” we accomplish this on a large-scale as the voice of our community through our Advocacy Agenda. This agenda is grounded in the core values that form UOAA’s vision: A society where people with ostomies or continent diversions are universally accepted and supported socially, economically, medically, and psychologically.
To this end, UOAA strives to:
Ensure public and private health insurance options, including those under the Affordable Care Act, Medicare, Children’s Health Programs, and Medicaid, provide affordable coverage and access to high quality healthcare services, technology, and products to meet the needs of people living with an ostomy or continent diversion so that they may participate fully in society.
Dispel the fear about undergoing this life-saving and life-restoring surgery and erase the myths, stigma and embarrassment that are sometimes associated with having an ostomy.