UOAA urges legislators and federal agency officials to implement policy and regulations that benefit patient-centered access to care, strengthen the patient-provider decision-making relationship, and minimize patient out-of-pocket costs.

In conjunction with the Digestive Diseases National Coalition (DDNC) efforts we continue to monitor US healthcare reform and will work to ensure preservation of basic patient protections from the Affordable Care Act including eliminating insurer discrimination against pre-existing conditions, establishing out of pocket maximums for covered services, and allowing young adults to stay on their parents’ insurance until the age of 26. These protections have made it possible for persons living with an ostomy or continent diversion to obtain insurance coverage and protect them from stratospheric medical bills.

Here is legislation that we support in the 116th Congress:

Removing Barriers to Colorectal Cancer Screening Act (S668/HR1570) – This would eliminate cost-sharing for initial and follow-up colorectal cancer screening tests such as removal of polyps for Medicare beneficiaries
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Signed-On House Support Letter >>
Signed-On Senate Support Letter >>

Disability Integration Act (DIA) (S117/HR555) – This civil rights bipartisan legislation would require insurance providers to cover community-based health care services for people with disabilities as an alternative to institutionalization. DIA would ensure that people could not be prematurely forced into nursing facilities because they couldn’t get assistance with health-related tasks such as maintenance and use of a stable ostomy.
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Check back for more as legislation is added in 2019!

Update as of December 2018

As a stakeholder in the Access and Care Coalition, UOAA is actively working with all of the stakeholder members to maintain the current Medicare reimbursement system for ostomy and urological products. Recently, UOAA joined several coalition members in DC to meet with CMS and key legislative offices. We were able to share what it means to live with an ostomy and why product choice is so important. By allowing people in these meetings to handle actual product samples we also left a greater impression.

Overall, we were very pleased with the information we elicited from CMS and we confirmed that they are focused on other areas (ventilators, off the shelf back braces and off the shelf knee braces) for the present time (at least until 2021) for potential expansion of the CBP program.

We will continue to be vigilant on this issue and educate key decision-makers on how this impacts people living with an ostomy so that all ostomates have access to the ostomy supplies that they need.

No current action is necessary from ostomates at this time.

We will provide further updates as they become available.

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Read the White Paper >>

Read the Access and Care Coalition Position Statement >>