UOAA is collecting personal stories from people around the U.S. that bring to life the experience of living with an ostomy or continent diversion and why you need access to a specific ostomy pouching system. Stories to explain how limiting access to ostomy supplies will place you at a real medical risk. Some individuals already experience these limitations, and IF, for example, lawmakers were to expand proposals such as the Medicare Competitive Bidding Program to include ostomy supplies, so would many others.
Here are the types of stories we’re collecting:
People who are enrolled in Medicare and would be affected by Competitive Bidding.
Individuals who have had difficulty accessing the prescribed pouching system that works best for them and who have had to substitute an ill-fitting product that led to medical complications (e.g., infections, hospitalizations, more medical visits, etc.).
People who have restrictions on gaining access to their specific ostomy appliance technology such as ordering frequency limits, maximum allowable limits on number ordered, where these limits have resulted in medical complications.
People who have difficulty accessing a WOC nurse or ostomy specialist in their area.
Why the need?
Your voice matters and UOAA wants to ensure your voice is heard. By telling your story, you help put a face on the issues that we continue to see in healthcare for ostomates. We will be able to demonstrate and convince legislators that people need access to a wide variety of pouching options and that limiting access to brands and types of supplies will have negative health consequences, therefore driving the cost of medical care even higher. Together we can change national policy.
How does this work?
Submit your story with permission agreement below.
After you submit your story our Advocacy Manager may contact you to learn more about your situation.
UOAA may match storytellers with opportunities to share their stories on an as needed basis. Examples of opportunities may include: coalition organizers, sharing testimonials with legislators in DC or policymakers, literature such as policy briefs or position statements, and use in our online efforts.
Your contact information will always remain private and we will always inform you before we release or use your story. You can always opt out of any opportunity.