Steve Hubbard’s Ostomy and Crohn’s Story
I’m 75 years old and this is my 56th year of living with Crohn’s disease and an ileostomy. I first started getting sick at 18 years old in 1967 right […]
Entries by Contributor
Do you speak stoma?
A New Guide aims to help you find the right words to talk about your ostomy By Joga Ivatury, M.D., MHA The Speaking Stoma Guide is the first health communication […]
Why Larry David’s “Colostomy Bag” Curb episode is making me speak out about my ostomy after 48 years
By Robin Bergstein Berman The latest episode of Larry David’s, Curb Your Enthusiasm was called “The Colostomy Bag” and during an attempt to be humorous, his usually (awkward and despicable […]
Osmani Gonzalez’s Story
Surviving colorectal cancer, reversal complications, and living with faith & perseverance In June 2018, Osmani Gonzalez began a new exercise program to help him lose weight and kickstart a healthier […]
Ostomy Advocates Taking Action in Washington, DC for Digestive Diseases
By Jeanine Gleba UOAA Advocacy Manager Each year the Digestive Disease National Coalition (DDNC) hosts a Spring Public Policy Forum. UOAA has been a member of this coalition for many […]
Sexual well-being and intimacy after ostomy surgery
After ostomy surgery, it’s natural to feel sensitive about how your body has changed and be concerned about how it might affect intimacy and your sex life in the future.
Dressing to Feel Good
It is amazing what a boost one can get from dressing to feel and look good, especially those of us with ostomies. I stress to dress so that you feel confident, comfortable, and good about yourself.
Ostomy Advocates in the ‘Room Where it Happens’
“One person can make a difference, and everyone should try.” – President John F. Kennedy By UOAA Advocacy Manager Jeanine Gleba UOAA Executive Director Christine Ryan During UOAA’s annual call […]
Victor’s Ostomy Story
Getting an ostomy completely changed my life but I didn’t let it completely change me. A lot of people don’t understand why I’m so positive and happy most of the time. It is because I have been through a lot in my short 30 years of life and I don’t want to let the bad things outweigh the good things. I want to be able to share with people that just because I have something like an ostomy doesn’t mean I can’t do the things I love. Being a bright light in a horrible disease is a blessing for me.
Caring for an Ostomate with Memory Loss
Frequently I speak to callers about the challenges of caring for an ostomate with memory loss. Often time, people who were previously self-sufficient, independent ostomates become pre-occupied with their pouch; sometimes even pulling on it, which could cause numerous issues1,
Contact Us
United Ostomy Associations of America
P.O. Box 2293
Biddeford, ME 04005-2293
Call us toll-free at: 1-800-826-0826.
Our Information Line hours are Monday-Friday, 9am to 3pm EST. If you have an emergency, please dial 911 or contact your local medical professional.
Please understand that UOAA is a private, nonprofit, advocacy and informational organization. We are not a medical facility and we do not have medical or legal professionals on staff. Therefore, UOAA does not provide Medical, Mental Health, Insurance or Legal Advice. Visit UOAA Virtual Ostomy Clinic provided by The Wound Company for non-emergency, virtual ostomy support.
Latest News:
Steve Hubbard’s Ostomy and Crohn’s StoryApril 25, 2024 - 11:25 am
Do you speak stoma?April 4, 2024 - 2:32 pm
Why Larry David’s “Colostomy Bag” Curb episode is making me speak out about my ostomy after 48 yearsMarch 28, 2024 - 10:43 am
Osmani Gonzalez’s StoryMarch 12, 2024 - 12:20 pm
Ostomy Advocates Taking Action in Washington, DC for Digestive DiseasesMarch 8, 2024 - 4:14 pm
