(3-5yrs)

Socialization & Activities

Activities, Youth Sports & Play Dates

There are no restrictions on activities, but it is helpful to empty the pouch before naps and active activities to help prevent accidental leaks.

Consider discussing your child’s ostomy surgery with the parents/caretakers of their close friends as well as coaches or group or class leaders (such as dance teachers). Letting them know what to do if there is a pouch leak during a play date is important, and providing written instructions is helpful including how to contact you. Giving them reassurance that a pouch leak, although it may be upsetting, is not an emergency and should be thought of similar to a bowel movement or urinating accident that a child without an ostomy may have.

Vacationing & Traveling

Making sure to pack appropriate supplies when vacationing. It is always helpful to have extra appliances and extra set of clothing on hand—pack these in carry luggage when taking a flight, along with any medicines your child may be taking.

 Know where the closest hospital is to your destination in case of an emergency. 

Hope, support, and finding community

Parent Stories

I sing during bag changes; this always makes him freeze and focus on my voice and lips. Once I’m done, we play for a minute before getting him dressed!

At first whenever I went swimming in the river, my bag would pop off and make a big mess. But then I figured out it was from being full of air, and air floats! Now I am careful to keep all the air out when I swim and it hasn’t been a problem.

Hollister

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