(10-13yrs)

Hospital to Home

If your ostomy is new and you are going home for the first time:

Get extra supplies, and prescriptions for medications.
Know when/what/how to contact your healthcare provider should you have any questions.
Make sure to keep your parents informed if anything changes or you do not feel well.
Keep any follow-up appointments and write down any questions you might have so you can talk about these at your next visit.
You and your parents’ work with the school to determine what schoolwork you may have missed and how you will return to school.
Take time to rest and recover from your surgery, follow any healthcare provider recommendations, and report any changes or concerns.

If you have been in the hospital and are now returning home:

Follow all recommendations from your health care provider.
Report any changes or concerns.

Hope, support, and finding community

Parent Stories

I sing during bag changes; this always makes him freeze and focus on my voice and lips. Once I’m done, we play for a minute before getting him dressed!

At first whenever I went swimming in the river, my bag would pop off and make a big mess. But then I figured out it was from being full of air, and air floats! Now I am careful to keep all the air out when I swim and it hasn’t been a problem.

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