(0-5yo)
Socialization & youth sports
There are no restrictions on activities, but it is helpful to empty the pouch before naps and active activities to help prevent accidental leaks.
Vacation & Travel
Making sure to pack appropriate supplies when vacationing. It is always helpful to have extra appliances and extra sets of clothing on hand—pack these in carry luggage when taking a flight, along with any medicines your child may be taking.
Know where the nearest hospital is to your destination in case of an emergency.
Clothing, Accessories, & Pouch Covers
One-piece jumpsuit or overall type clothes are helpful for younger children in this age group especially if they tend to want to “play” with the ostomy pouch. Tuck the pouch into undergarments, shorts, pants can also help. Using an ostomy belt that matches the pouch can be helpful in adding support or help prevent the child from inadvertently removing the pouch.
If your child is sensitive to smells or has concerns for others noticing odors, there are deodorizing products from all the major ostomy companies. In addition, it may be helpful to supply the daycare / preschool staff with a small bottle of deodorizing spray to use when emptying the pouch. Keep in mind that the ostomy output odor is usually similar to stool odor.
Hope, support, and finding community
Parent Stories
Contact Us
United Ostomy Associations of America
P.O. Box 2293
Biddeford, ME 04005-2293
Call us toll-free at: 1-800-826-0826.
Our Information Line hours are Monday-Friday, 9am to 3pm EST. If you have an emergency, please dial 911 or contact your local medical professional.
Please understand that UOAA is a private, nonprofit, advocacy and informational organization. We are not a medical facility and we do not have medical or legal professionals on staff. Therefore, UOAA does not provide Medical, Mental Health, Insurance or Legal Advice. Visit UOAA Virtual Ostomy Clinic provided by The Wound Company for non-emergency, virtual ostomy support.
Latest News:
Steve Hubbard’s Ostomy and Crohn’s StoryApril 25, 2024 - 11:25 am
Do you speak stoma?April 4, 2024 - 2:32 pm
Why Larry David’s “Colostomy Bag” Curb episode is making me speak out about my ostomy after 48 yearsMarch 28, 2024 - 10:43 am
Osmani Gonzalez’s StoryMarch 12, 2024 - 12:20 pm
Ostomy Advocates Taking Action in Washington, DC for Digestive DiseasesMarch 8, 2024 - 4:14 pm
