(3-5yo)
Websites
American College of Surgeons Pediatric Ostomy Home Skills Program.
This site provides written and video content to master ostomy care at home.
Shadow Buddies: Shadow Buddies Foundation is a non-profit organization that provides condition-specific dolls designed to help normalize medical conditions for children. There are over 30 different Shadow Buddies including a “Pre-op Buddy” to help prepare children for surgery. The Ostomy Buddy comes with a stoma and a pouch. Ostomy Shadow Buddies are sponsored by Hollister, Inc. Call for more information 1-888-808-7456. Shadow Buddies also offers activities such “Pink Parties” and “Superhero Parties” for boys and girls with medical conditions.
Ostomy Manufacturing company’s
educational materials:
Coloplast: Life After Your Child’s Ostomy This document from Coloplast covers a broad range of pediatric ostomy topics, from pouch selection and steps to pouch change, to diet and medication questions.
Convatec: Caring for a Child with an Ostomy Convatec provides multiple resources, including common questions about caring for a child with an ostomy and returning to school.
Hollister: Summertime Care for Children with Ostomies This resource provides information on caring for children with ostomies during summertime activities including swimming, as well as summertime clothing, play and vacation prep
Books
- Octavia the Octopus has an Ostomy by Rebekah Foguth
- Awesome Ollie by Dawnette Meredith and Brittney Meredith
- Wearing a Colostomy Bag by Hariet Brundle
- Why Buttercup Wears a BAG! by Jo-Ann L. Tremblay
PDF’s
Hope, support, and finding community
Parent Stories
Contact Us
United Ostomy Associations of America
P.O. Box 2293
Biddeford, ME 04005-2293
Call us toll-free at: 1-800-826-0826.
Our Information Line hours are Monday-Friday, 9am to 3pm EST. If you have an emergency, please dial 911 or contact your local medical professional.
Please understand that UOAA is a private, nonprofit, advocacy and informational organization. We are not a medical facility and we do not have medical or legal professionals on staff. Therefore, UOAA does not provide Medical, Mental Health, Insurance or Legal Advice. Visit UOAA Virtual Ostomy Clinic provided by The Wound Company for non-emergency, virtual ostomy support.
Latest News:
Steve Hubbard’s Ostomy and Crohn’s StoryApril 25, 2024 - 11:25 am
Do you speak stoma?April 4, 2024 - 2:32 pm
Why Larry David’s “Colostomy Bag” Curb episode is making me speak out about my ostomy after 48 yearsMarch 28, 2024 - 10:43 am
Osmani Gonzalez’s StoryMarch 12, 2024 - 12:20 pm
Ostomy Advocates Taking Action in Washington, DC for Digestive DiseasesMarch 8, 2024 - 4:14 pm
