(3-5yo)

Support, Resources, & Links

Websites

American College of Surgeons Pediatric Ostomy Home Skills Program.
This site provides written and video content to master ostomy care at home.

Shadow Buddies: Shadow Buddies Foundation is a non-profit organization that provides condition-specific dolls designed to help normalize medical conditions for children. There are over 30 different Shadow Buddies including a “Pre-op Buddy” to help prepare children for surgery. The Ostomy Buddy comes with a stoma and a pouch. Ostomy Shadow Buddies are sponsored by Hollister, Inc. Call for more information 1-888-808-7456. Shadow Buddies also offers activities such “Pink Parties” and “Superhero Parties” for boys and girls with medical conditions.

Ostomy Manufacturing company’s
educational materials:

Coloplast: Life After Your Child’s Ostomy This document from Coloplast covers a broad range of pediatric ostomy topics, from pouch selection and steps to pouch change, to diet and medication questions.

Convatec: Caring for a Child with an Ostomy  Convatec provides multiple resources, including common questions about caring for a child with an ostomy and returning to school.

Hollister: Summertime Care for Children with Ostomies This resource provides information on caring for children with ostomies during summertime activities including swimming, as well as summertime clothing, play and vacation prep

Books

PDF’s

Hope, support, and finding community

Parent Stories

Various versions have evolved over the years, sometimes by accident, sometimes on purpose (injected humour and the like). Various versions have evolved over the years, sometimes by accident, sometimes on purpose (injected humour and the like).

PreviousNext