(18-25yo)

Support, Resources, & Links

Support & Resources:

Websites

Crohn’s and Colitis Foundation of America
800-932-2930
www.ccfa.org

Coloplast
www.coloplast.com/ostomycare/pages/ostomycare.aspx

Convatec Inc.
www.convatec.ca/ostomy/living-with-an-ostomy/caring-for-a-child-with-an-ostomy/

Hollister, Inc.
www.hollister.com/en/ostomycare/ostomycareprofessionalresources/resourcesforyourpatients/ostomypediatric

Newbieostomy, find a support group in your area
newbieostomy.com/get-support/ostomy-support-groups/

Pull Thru Network
205-978-2930
www.pullthrunetwork.org

Shop Ostomy Supplies
www.shopostomysupplies.com/ar-teenage-ostomy-making-it-less-awkward.html

United Ostomy Association of America
800-826-0826
www.ostomy.org

Wound, Ostomy and Continence Nurses Society (WOCN)
cdn.ymaws.com/member.wocn.org/resource/resmgr/document_library/Teen_Chat_You_&_Your_Ostomy_.pdf

Books

Benirschke, R.  Great Comebacks from Ostomy Surgery (The inspirational stories of 15 people who have survived and thrived following ostomy surgery.) 

Benirschke, R. Embracing Life: Great Comebacks from Ostomy Surgery. (Follow-up to Rolf’s Great Comebacks from Ostomy Surgery and his autobiography Alive & Kicking)

Benirschke, R.  Alive & Kicking. (The true story an NFL star’s battle with ulcerative colitis, ostomy surgery and hepatitis C).

Elsagher, B. It’s in the Bag & Under the Covers. (People with ostomies that share dealing with dating, intimacy, sex and caregiving). 

Kupfer, B, Foley-Bolch, K, Kasouf, MF & Sweeney, WB.  Yes, We Can!  (Advice on Traveling with an Ostomy and Tips for Everyday Living).

Mullen, BA & McGinn, KA (2008). THE OSTOMY BOOK: Living Comfortably with Colostomies, Ileostomies and Urostomies

Prosser, E. & P. Unwanted Baggage. A Resource Guide for Ostomy Patients and Those Who Share Their Lives

Rayson, E (20120. Living with an Ostomy.  (Covers the practical aspects of ostomy care and coping).

White, CA. Positive Options for Living with Your Ostomy (Covers practical and emotional aspects and provides psychological adjustment advice that doctors, surgeons and nurses may not give). 

Toolkits

A Guide to Gutsy Living, Patient Advisory Council for the Improve Care Now Network (ICN): Network’s website bit.ly/2EnkIBX

Facebook + Twitter

Facebook: Life with an Ostomy, Ileostomy, colostomy, stoma and bowel support, Colostomy and Stoma Support Group.

Twitter: Everything Ostomy, Doctor with a Stoma

Hope, support, and finding community

Parent Stories

Various versions have evolved over the years, sometimes by accident, sometimes on purpose (injected humour and the like). Various versions have evolved over the years, sometimes by accident, sometimes on purpose (injected humour and the like).