(14-18yo)
Support & Resources:
Websites
Crohn’s and Colitis Foundation of America
800-932-2930
www.ccfa.org
Coloplast
www.coloplast.com/ostomycare/pages/ostomycare.aspx
Convatec Inc.
www.convatec.ca/ostomy/living-with-an-ostomy/caring-for-a-child-with-an-ostomy/
Girls with Guts
https://www.girlswithguts.org/
Hollister, Inc.
www.hollister.com/en/ostomycare/ostomycareprofessionalresources/resourcesforyourpatients/ostomypediatric
Newbieostomy, find a support group in your area
newbieostomy.com/get-support/ostomy-support-groups/
Pull Thru Network
205-978-2930
www.pullthrunetwork.org
Shop Ostomy Supplies
www.shopostomysupplies.com/ar-teenage-ostomy-making-it-less-awkward.html
United Ostomy Association of America
800-826-0826
www.ostomy.org
Wound, Ostomy and Continence Nurses Society (WOCN)
cdn.ymaws.com/member.wocn.org/resource/resmgr/document_library/Teen_Chat_You_&_Your_Ostomy_.pdf
Books
Mullen, BA & McGinn, KA. (Third Edition). The Ostomy Book: Living Comfortably with Colostomies, Ileostomies, and Urostomies, Bull Publishing.
Teen Life with an Ostomy
www.ostomy.org/teen-life-with-an-ostomy/
Download a free copy of this teen resource here:
www.coloplast.us/landing-pages/teen-booklet/
Toolkits
A Guide to Gutsy Living, Patient Advisory Council for the Improve Care Now Network (ICN): Network’s website bit.ly/2EnkIBX
Talking to your Kids about Ostomy Surgery. Vegan Ostomy.
www.veganostomy.ca/explain-ostomy-to-kids/
Awesome Ostomy Kids, Ostomy Support Group for Kids,
GI/Ostomy Group for Teens
Hope, support, and finding community
Parent Stories
Contact Us
United Ostomy Associations of America
P.O. Box 2293
Biddeford, ME 04005-2293
Call us toll-free at: 1-800-826-0826.
Our Information Line hours are Monday-Friday, 9am to 3pm EST. If you have an emergency, please dial 911 or contact your local medical professional.
Please understand that UOAA is a private, nonprofit, advocacy and informational organization. We are not a medical facility and we do not have medical or legal professionals on staff. Therefore, UOAA does not provide Medical, Mental Health, Insurance or Legal Advice. Visit UOAA Virtual Ostomy Clinic provided by The Wound Company for non-emergency, virtual ostomy support.
Latest News:
Steve Hubbard’s Ostomy and Crohn’s StoryApril 25, 2024 - 11:25 am
Do you speak stoma?April 4, 2024 - 2:32 pm
Why Larry David’s “Colostomy Bag” Curb episode is making me speak out about my ostomy after 48 yearsMarch 28, 2024 - 10:43 am
Osmani Gonzalez’s StoryMarch 12, 2024 - 12:20 pm
Ostomy Advocates Taking Action in Washington, DC for Digestive DiseasesMarch 8, 2024 - 4:14 pm
