(14-18yo)

Advice & Resources for Parents

Support & Resources:

Websites

Crohn’s and Colitis Foundation of America
800-932-2930
www.ccfa.org

Coloplast
www.coloplast.com/ostomycare/pages/ostomycare.aspx

Convatec Inc.
www.convatec.ca/ostomy/living-with-an-ostomy/caring-for-a-child-with-an-ostomy/

Girls with Guts
https://www.girlswithguts.org/

Hollister, Inc.
www.hollister.com/en/ostomycare/ostomycareprofessionalresources/resourcesforyourpatients/ostomypediatric

Newbieostomy, find a support group in your area
newbieostomy.com/get-support/ostomy-support-groups/

Pull Thru Network
205-978-2930
www.pullthrunetwork.org

Shop Ostomy Supplies
www.shopostomysupplies.com/ar-teenage-ostomy-making-it-less-awkward.html

United Ostomy Association of America
800-826-0826
www.ostomy.org

Wound, Ostomy and Continence Nurses Society (WOCN)
cdn.ymaws.com/member.wocn.org/resource/resmgr/document_library/Teen_Chat_You_&_Your_Ostomy_.pdf

Books

Mullen, BA & McGinn, KA. (Third Edition). The Ostomy Book: Living Comfortably with Colostomies, Ileostomies, and Urostomies, Bull Publishing.

Teen Life with an Ostomy
www.ostomy.org/teen-life-with-an-ostomy/
Download a free copy of this teen resource here:
www.coloplast.us/landing-pages/teen-booklet/

Toolkits

A Guide to Gutsy Living, Patient Advisory Council for the Improve Care Now Network (ICN): Network’s website bit.ly/2EnkIBX

Talking to your Kids about Ostomy Surgery. Vegan Ostomy.
www.veganostomy.ca/explain-ostomy-to-kids/

Facebook

Awesome Ostomy Kids, Ostomy Support Group for Kids,
GI/Ostomy Group for Teens

Hope, support, and finding community

Parent Stories

Various versions have evolved over the years, sometimes by accident, sometimes on purpose (injected humour and the like). Various versions have evolved over the years, sometimes by accident, sometimes on purpose (injected humour and the like).

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