By UOAA Advocacy Committee Members:
Joanna Burgess-Stocks BSN, RN, CWOCN
Anita Prinz RN, MSN, CWOCN
Why does one have their bladder removed?
The most common reason for removal of the bladder (radical cystectomy) is due to bladder cancer.…
https://i1.wp.com/www.ostomy.org/wp-content/uploads/2019/04/Bladder-diversions_web.jpg?fit=1800%2C1200&ssl=112001800Contributor/wp-content/uploads/2017/02/UOAAlogofinal2.pngContributor2019-04-30 16:52:142019-04-30 16:52:14The Ins & Outs of Continent Diversions for the Bladder: What You Need to Know
They are all superheroes in our book. They come in on their day off for us, they heal us, they teach us, they empower us, they advocate for us, they volunteer for us, they learn for us, they run our support groups, they make us laugh and help…
https://i2.wp.com/www.ostomy.org/wp-content/uploads/2019/04/2019-nurseweek-banner-1080x1.jpg?fit=1080%2C1080&ssl=110801080Contributor/wp-content/uploads/2017/02/UOAAlogofinal2.pngContributor2019-04-16 16:18:012019-04-19 16:59:13Meet These Super Ostomy Nurses
Support the Disability Integration Act
By Jeanine Gleba UOAA Advocacy Manager
Sue Mueller, BSN, CWOCN
Does an ostomy qualify as a disability? This is a question that UOAA receives on occasion. You are living with an ostomy, you…
https://i0.wp.com/www.ostomy.org/wp-content/uploads/2019/04/Disibility-Matters_-web.jpg?fit=2200%2C1467&ssl=114672200Contributor/wp-content/uploads/2017/02/UOAAlogofinal2.pngContributor2019-04-16 10:05:142019-04-16 10:06:02Does an Ostomy Qualify as a Disability?
UOAA conference speaker strategically uses humor to help ostomy patients
By Ed Pfueller, UOAA
If you’re a patient of Janice Beitz, PhD, RN, CS, CNOR, CWOCN-AP, CRNP, APNC, ANEF, FNAP, FAAN, she will likely look you in the eye and know…
https://i2.wp.com/www.ostomy.org/wp-content/uploads/2019/04/Intestines-crop.jpg?fit=2200%2C993&ssl=19932200Contributor/wp-content/uploads/2017/02/UOAAlogofinal2.pngContributor2019-04-12 10:35:202019-04-26 16:17:34Intestines Are Soooooo Overrated
By Jody Scardillo DNP RN ANP-BC CWOCN
Albany Medical Center- Albany, NY
It’s amazing what can happen when a little effort is made. In April of 2018, the insurer NY Medicaid decreased the allowable quantity for certain ostomy…
https://i2.wp.com/www.ostomy.org/wp-content/uploads/2019/04/advocacy-blogwe-collaboration.jpg?fit=1600%2C950&ssl=19501600Contributor/wp-content/uploads/2017/02/UOAAlogofinal2.pngContributor2019-04-09 09:28:162019-04-09 09:28:16Collaborating for Advocacy Success
Your stoma care nurse has the specialized training to help you care for your ostomy and address any issues that arise. These professionals are also known as “WOC” (wound, ostomy, and continence) nurses. Stoma care nurses are there to help…
https://i2.wp.com/www.ostomy.org/wp-content/uploads/2019/03/SkinHealth_Hollister_web.jpg?fit=1800%2C1200&ssl=112001800Hollister/wp-content/uploads/2017/02/UOAAlogofinal2.pngHollister2019-04-04 14:36:482019-04-04 14:36:48When to Contact Your Stoma Care Nurse
Following your ostomy surgery, you will no doubt have an adjustment period of figuring out your new routines and schedule. You will be learning about your appliance, how to use it, when to change it, and how it works. Although there may be frustrating…
https://i1.wp.com/www.ostomy.org/wp-content/uploads/2019/03/image004.jpg?fit=1600%2C624&ssl=16241600Contributor/wp-content/uploads/2017/02/UOAAlogofinal2.pngContributor2019-03-29 10:10:352019-03-29 15:21:19Learning to Love Your Body – Stoma and All
By Ed Pfueller, UOAA
Amazing things can happen when ostomy patient advocates and clinicians come together.
Dr. Neilanjan Nandi, MD an IBD specialist at Hahnemann University Hospital in Philadelphia, trained in cities across the country…
https://i1.wp.com/www.ostomy.org/wp-content/uploads/2019/03/Philly-meeting_web.jpg?fit=1000%2C594&ssl=15941000Contributor/wp-content/uploads/2017/02/UOAAlogofinal2.pngContributor2019-03-20 10:41:512019-03-26 13:07:57Ostomy Patients Enlighten Medical Staff
Ostomates Provide Insight to Lawmakers on Behalf of UOAA
By Ellyn Mantell and Michael Quear
UOAA Representative - Ellyn Mantell
There is so much frustration and dissatisfaction around the government right now, that it is easy to forget…
https://i0.wp.com/www.ostomy.org/wp-content/uploads/2019/03/DDNCcropGroupphotoweb.jpg?fit=1000%2C655&ssl=16551000Contributor/wp-content/uploads/2017/02/UOAAlogofinal2.pngContributor2019-03-18 14:57:232019-03-30 13:08:11UOAA Advocates in Action
Call us toll-free at: 1-800-826-0826.
Our Information Line hours are Monday-Friday, 9am to 3pm (Wednesday until 2pm) EST. If you have an emergency, please dial 911 or contact your local medical professional.
UOAA does not provide Medical, Mental Health, Insurance or Legal Advice.
Join our national advocacy network and take action on issues that affect the quality of life of all people living with an ostomy or continent diversion in the United States. Help UOAA make an impact on decision-makers and together we can drive change.