Entries by Contributor


Meet These Super Ostomy Nurses

They are all superheroes in our book. They come in on their day off for us, they heal us, they teach us, they empower us, they advocate for us, they volunteer for us, they learn for us, they run our support groups, they make us laugh and help dry our tears. They are also a […]

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Does an Ostomy Qualify as a Disability?

Support the Disability Integration Act By Jeanine Gleba UOAA Advocacy Manager     Sue Mueller, BSN, CWOCN Does an ostomy qualify as a disability? This is a question that UOAA receives on occasion. You are living with an ostomy, you feel pride that you are independent with your ostomy care, that you are able to problem solve […]


Collaborating for Advocacy Success

By Jody Scardillo DNP RN ANP-BC CWOCN Albany Medical Center- Albany, NY The Issue It’s amazing what can happen when a little effort is made.  In April of 2018, the insurer NY Medicaid decreased the allowable quantity for certain ostomy barriers from ten to eight per month.  This included extended wear barriers with and without […]


Ostomy Patients Enlighten Medical Staff

By Ed Pfueller, UOAA Amazing things can happen when ostomy patient advocates and clinicians come together. Dr. Neilanjan Nandi, MD an IBD specialist at Hahnemann University Hospital in Philadelphia, trained in cities across the country and has long observed that “physicians were not comfortable with stoma care and troubleshooting as we should be.” “I learned […]


UOAA Advocates in Action

Ostomates Provide Insight to Lawmakers on Behalf of UOAA By Ellyn Mantell and Michael Quear UOAA Representative – Ellyn Mantell There is so much frustration and dissatisfaction around the government right now, that it is easy to forget all of the wonderful things that continue to be done behind the scenes, and I want to […]

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Ostomy Support for Colorectal Cancer Patients

Whether Temporary or Permanent UOAA information and Support can help you Succeed in Life with an Ostomy. By Ed Pfueller, UOAA March is Colorectal Cancer Awareness Month. Colorectal cancer often has no warning signs or symptoms, and it affects more than 140,000 men and women each year. It is largely preventable with screening and treatable […]

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Jennifer Repine’s Story

Support Made the Difference Before Reversal I was halfway through a 10-hour drive home to Lancaster County PA from Dayton, where I’d just finished a Relay For Life, when I felt the first pains in my lower left side. Thinking they were just cramps, I shrugged them off and kept driving. The cramps persisted though, […]