Ostomy Information and Care Guides
Note:
Many of the documents available on this page, some in both English
and Spanish, were produced by the United Ostomy Association (UOA),
which was the national ostomy organization in the United States from
1962 to 2005. Some of these publications, namely, the “Guidebooks” and
“Reference Cards,” were actually sold by UOA. UOA disbanded
in Fall of 2005 and released all copyrights on this material, which is
now provided for free, in electronic form, by UOAA, the new national
ostomy organization.
Some of the old UOA documents have been revised and have been updated to display UOAA contact information; however, some still display original UOA markings and contact information. UOA cannot be contacted because it no longer exists; however, UOA's old toll-free phone number (800-826-0826) reaches UOAA now. Also, the URL of UOA's old website (www.uoa.org) redirects now to the UOAA site (www.ostomy.org).
We are most grateful to the WOCN for providing four items of interest to you. WOCN - the Wound Ostomy and Continence Nurses Society - is the professional society for specialist nurses who provide expert care for people living with stomas, wounds or continence situations. You can locate a certified WOC Nurse near you at their Nurse Referral Center.
America’s Leading Ostomy Magazine
The
Phoenix is America’s leading ostomy patient magazine
providing colostomy, ileostomy, urostomy and continent diversion (J-pouch,
Kock pouch, Indiana pouch, etc.) information, management techniques, new
products and much more.
Each 72-page issue features professionally written, in-depth articles on topics new and experienced ostomy patients care about such as stories of recovery after colostomy, ileostomy, urostomy or continent diversionary surgery; ostomy care advice in Ask the Ostomy Nurse and Ask the Doctor and living a full life with an ostomy pouch (bag).
The Phoenix magazine is published quarterly – March, June, September and December. Annual subscriptions are $29.95 and two-year subscriptions are $49.95 (16.6% discount).
Your Complete Recovery From Ostomy Surgery. Learn the important steps you need to take to fully heal after colostomy, ileostomy or urostomy surgery. Written by ostomy nurse Anita Prinz, RN, MSN, CWOCN. Read the complete article.
The Phoenix is the official publication of the United Ostomy Associations of America and half of each subscription directly supports the UOAA and is the main source of revenue for the national, non-profit ostomy support association.
Excerpts have been compiled from The Phoenix for new patients, by stoma type. These contain pertinent articles, Q&As and other material to inform new patients as well as introduce them to The Phoenix magazine:
- Colostomy articles for the new patient (PDF, 36 pp, 2.00 MB)
- Ileostomy articles for the new patient (PDF, 36 pp, 1.78 MB)
- Urostomy articles for the new patient (PDF, 32 pp, 1.53 MB)
- Continent Diversion articles for the new patient (PDF, 20 pp, 597 kB)
General Information
| What is an Ostomy, Pouching Systems, Psychosocial Issues |
| Frequently Asked Questions (FAQ) |
| Ostomy Supply Manufacturers & Distributors |
| Ostomate Bill of Rights |
| Ostomy Travel Tips |
| UOAA’s LIVING with an Ostomy Video |
| Ostomy Home Skills Kit
from American College of Surgeons (external link to American College of Surgeons website) |
| Swimming
and Aquatic Therapy for Ostomates (external link to Aquatic Therapy Journal; Sept 2006; see article on pp 3–7) |
Colostomy
| Colostomy Guide: | In English (24 pp, 195 kB) |
En Español (29 pp, 271 kB) |
Guidebook, PDF format |
| Colostomy Facts: | In English | En Español | Fact Sheet (web page) |
| Colostomy Irrigation: | In English (4 pp, 159 kB) |
N/A | Article by Debra Rooney PDF format |
| Irrigation FAQs: | In English (13 pp, 83 kB) |
N/A | PDF document |
| Colostomy: Articles for New Patients |
In English (36 pp, 2.00 MB) |
N/A | Articles from The Phoenix PDF format |
Ileostomy
| Ileostomy Guide: | In English (29 pp, 162 kB) |
En Español (30 pp, 180 kB) |
Guidebook, PDF format |
| Ileostomy Facts: | In English | En Español | Fact Sheet (web page) |
| Ileostomy Blockage Treatment Card: |
In English (2 pp, 68 kB) |
N/A | Reference Card, PDF |
| Ileostomy: Articles for New Patients |
In English (36 pp, 1.78 MB) |
N/A | Articles from The Phoenix PDF format |
Ileostomy – Continent alternatives
| Ileoanal Reservoir (J-Pouch) Guide: |
In English (29 pp, 389 kB) |
En Español (31 pp, 593 kB) |
Guidebook, PDF format |
| Surgical Options for Bowel Diversion: |
In English (2 pp, 382 kB) |
En Español (2 pp, 88 kB) |
Brochure, PDF format |
| Continent Diversion: Articles for the New Patient |
In English (20 pp, 597 kB) |
N/A | Articles from The Phoenix PDF format |
Urostomy
| Urostomy Guide: | In English (25 pp, 162 kB) |
En Español (24 pp, 129 kB) |
Guidebook, PDF format |
| Urostomy Facts: | In English | En Español | Fact Sheet (web page) |
| Urostomy: Articles for New Patients |
In English (32 pp, 1.53 MB) |
N/A | Articles from The Phoenix PDF format |
Urostomy – Continent alternatives
| Continent Urostomy Guide: |
In English (21 pp, 195 kB) |
En Español (25 pp, 246 kB) |
Guidebook, PDF format |
| Surgical Options for Bladder Diversion: |
In English (2 pp, 425 kB) |
En Español (2 pp, 127 kB) |
Brochure, PDF format |
| Orthotopic Neobladder: | In English (2 pp, 109 kB) |
N/A | Brochure, PDF format |
| Continent Diversion: Articles for the New Patient |
In English (20 pp, 597 kB) |
N/A | Articles from The Phoenix PDF format |
Sexuality
| Intimacy, Sexuality and an Ostomy: |
In English (22 pp, 237 kB) |
En Español (16 pp, 110 kB) |
Guidebook, PDF format |
| Sex and the Male Ostomate: |
In English | En Español | Fact Sheet (web page) |
| Sex and the Female Ostomate: |
In English | En Español | Fact Sheet (web page) |
| Sex and the Single Ostomate: |
In English | En Español | Fact Sheet (web page) |
| Gay & Lesbian Ostomates and their Caregivers: |
N/A | En Español (2 pp, 71 kB) |
Brochure, PDF format |
Diet & Nutrition
| Diet & Nutrition Guide: |
In English (21 pp, 119 kB) |
En Español (22 pp, 105 kB) |
Guidebook, PDF format |
| Ostomate’s Food Reference Chart: |
In English (1 pp, 29 kB) |
N/A | Reference Card, PDF |
| Ileostomy Blockage Treatment Card: |
In English (2 pp, 68 kB) |
N/A | Reference Card, PDF |
Miscellaneous Brochures (all in PDF format)
| Resources for Employment- based Discrimination: |
In English (2 pp, 19 kB) |
N/A |
| Spouse & Family Support for Ostomates: |
In English (2 pp, 23 kB) |
N/A |
| My Child Has an Ostomy: | In English (2 pp, 20 kB) |
N/A |
| Parents of Ostomy Children: |
N/A | En Español (2 pp, 72 kB) |
| So You Have or Will Have an Ostomy: |
N/A | En Español (2 pp, 80 kB) |
Patient Information from WOCN (English only, all in PDF format)
| Basic Ostomy Skin Care (16 pp, 648 kB) |
| Convex Pouching Systems (6 pp, 265 kB) |
| Discharge Planning (2 pp, 68 kB) |
| Preoperative Stoma Marking (4 pp, 118 kB) |